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What is Motor Neurone Disease?


What Is Motor Neurone Disease? 

Motor neurone disease (MND) is a neurodegenerative disorder that involves the death of motor neurones in the brain. Motor neurones control muscle movement in our body so those with MND experience symptoms related to muscle weakness such as difficultly speaking, eating, and moving. The disease eventually leads to paralysis and death, most commonly within five years of disease onset, though some anomalies exist (like Stephen Hawking, who lived with the disease for over 50 years).

MND has a lifetime risk of roughly 1 in 400, and over 5000 adults are thought to live with the disease in the UK at any given time. The global prevalence of MND has been predicted to increase by almost 70% by 2040, making the need to develop treatments incredibly important. Despite this, years of research have yielded no cure and the only prescribed treatment in the UK can extend the life expectancy of someone with MND for approximately three months. 

Living with Motor Neurone Disease

Richard Holmes began experiencing symptoms of Motor Neurone Disease (MND) in March 2022, with an official diagnosis following in September of the same year. Despite the challenges posed by MND, Richard's unwavering Christian faith remains a source of strength for him during this difficult time.

EndMND partnered with the South Yorkshire branch of the MND Association to create a documentary highlighting Richard's journey. Stay tuned for the release of this powerful story.

The Motor Neurone Disease Association (MND Association) focuses on improving access to care, research and campaigning for those people living with or affected by Motor Neurone Disease in England, Wales, and Northern Ireland. Click the button below to find out more.

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